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DDAdvocates 20110607 SEVEN DAYS AND COUNTING DOWN — RESPOND TO CMS NOW | DDadvocates.com

The following link to Age of Autism is must reading for anyone in the country who considers themselves an advocate for persons with developmental disabilities. Notice that the author nowhere wants to restrict services or the independence of high functioning person with disabilities; for instance: those  who are capable of enjoying even full time jobs, college experiences and home ownership. What the author wants, and many people who commented on the link want is for CMS  to recognize that its proposed residential guidelines: 

  • will be too limiting or demanding for most persons with severe to moderate disabilities and that
  • needed and desired and appropriate services will be ruled out and / or dismantled.
One size fits all mentality is very popular in mainstream advocacy circles in Michigan and its effects are already being seen in 
  • underfunding of congregate day programs 
  • efforts to close larger group homes regardless of quality of service 
  • limited housing and respite options for the most severely impaired.

 In effect, mainstream advocates hold up the capabilities of our most capable children and adults  and pretend that the rest don’t exist or will be able to tag along. This mentality is now being reflected in proposed CMS Guidelines for housing 

It will take a few minutes to read the article and 3 minutes to log your comments to the CMS web site before the June 14 deadline. IF YOU DO NOTHING ELSE, TELL CMS THAT  THE PROPOSED GUIDELINES ARE TOO RESTRICTIVE AND WILL RESULT IN DISMANTLING OF EXISTING AND PLANNED QUALITY PROGRAMS. TELL THEM THE DD COMMUNITY REQUIRES A FULL RANGE OF RESIDENTIAL OPTIONS (SIZE, SETTING AND SUPPORTS) AND THAT THE GUIDELINES OUGHT TO SUPPORT APPROPRIATE HIGH QUALITY SERVICES FOR PERSONS WITH ALL LEVELS OF DISABILITIES. WHEN THIS HAPPENS, EACH PERSON WILL BE ABLE TO DECIDE WITH THE ASSISTANCE OF FAMILY AND OTHER SUPPORTS WHICH LEVEL OF INDEPENDENCE AND COMMUNITY INVOLVEMENT THEY  DESIRE AND ARE CAPABLE OF..  

Here is the link to Age of Autism: http://www.ageofautism.com/2011/06/proposed-rules-changes-to-medicaid-program-home-and-community-base


Here is the link to the proposed CMS regulations: http://edocket.access.gpo.gov/2011/2011-9116.htm 

 

Submit comments electronically herehttp://www.regulations.gov/#!submitComment;D=CMS-2009-0071-0302. This is a quick and easy link for electronic commenting. In commenting, refer to file code CMS-2296-P 


One last thought:  The role of CMS is to provide quality residential support. The role of persons with Developmental Disabilities and their families and supports is to decide the best setting for their individual homes.When CMS takes over the individual’s role, it denies the individual the very freedoms it is attempting to protect. 


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